I say I have hypermobility syndrome, but today this is a simplification. Back when I first started suffering it was (like so many illnesses and conditions) not understood as well and therefore diagnosis was difficult and treatment was in its infancy. I say treatment, but this can only manage the condition, for which there is no cure.
Basic information about hypermobility syndrome is available from the NHS website. It is interesting to note that, even now, the NHS direct you to other sources of information from the specialist UK support groups of the Hypermobility Syndromes Association and Ehlers-Danlos Support UK.
To give you a basic idea about hypermobility is that it is a condition which means people are more flexible than normal which leads to joint and other problems. It can be very mild, having a limited impact on daily life, to severe resulting in frequent or daily dislocations, which can make it difficult to carry out daily tasks.
I may also have been unfortunate as I did not grow up in large UK city. I did have two parents in the NHS, but this was not always an advantage!
[more to come]
No comments:
Post a Comment